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Charlotte raises £900 for Chordoma UK...

This story dropped off our site so we're reloading it to say thanks again to Charlotte and her supporters who ran the Hampton Court 1/2 marathon for Chordoma UK back in February...  Here's Charlotte's just giving page with all the background to her wonderful fundraising effort - clearly in the past tense!

I am running for Emma who last year was diagnosed with a rare and often fatal form of cancer, Chordoma. Emma has 3 young children - the smallest was just 6 months old when she was diagnosed.

Following crucial surgery, Emma had most of the tumour removed but the tumour eroded a lot of her vertebra on one side of her neck so she now has metalwork , leading to very limited movement in the neck. Surgery didn't remove all of the tumour. It's a watch and wait game with regular MRI scans. Best case scenario is that the tumour can be controlled and managed and remains stable for some time. At some point in the future Emma will need further surgery and proton beam radiation therapy.

So, in the face of all this Emma decided to run a half marathon. Having not run before Emma is determined to run and raise funds for Chordoma UK. Vital research is needed to help tackle this - literally - 1 in a million form of cancer. If she can achieve one thing Emma would like to ensure that someone else being diagnosed as she was, can have access to more information about the disease and ultimately  - npot be told that it is incurable.

So - Emma got New Malden running. Inspired by her and wanting to support her the running group just keeps growing. Two to three times a week people meet and - well, just run. Some days there are two runners, some days there are ten. There has been torrential rain and there have been head torches. People turn up despite teething babies and tantrum prone toddlers up at 4 am (maybe because of the latter). Older children have been known to join in. By bringing these people together, friendships have formed, mental and physical health is improved and above all we are hoping to make a difference for anyone who finds themselves in the position Emma did last year.

News archive

April 2019

My Day Out – Classic Car Outing 2019

March 2019

Notochordal Cell Tumours Workshop Chordoma research prize

February 2019

Understanding Chordoma: A National Cohort Study

March 2018

Understanding Chordoma: A National Cohort Study

December 2017

Congratulations to Professor Adrienne Flanagan

August 2017

Why do one event when you can do two!

May 2017

UK chordoma patient choose Prague for his PBT...UK's first high-energy proton beam machine in...New Malden Farmers Market supports Chordoma UK

April 2017

Spring 2017 update from Chordoma UK and...Emma Holloway and "Team Chordoma" raises some...Thank you to the Tanner TrustParis marathon runner Alex raises almost...Charlotte raises £900 for Chordoma UK...Another London Marathon run for CUK

October 2016

What has McDonald's & chordoma got in common?...

August 2016

Chordoma Biobank coordinator Clare Unwin...

June 2016

Clare Unwin Joins CUK / UCL Cancer Institute..

January 2016

Chordoma UK funds UCL Cancer Institute Biobank...2016 London Marathon team runners - Ed and...

November 2015

You've broken the £400,000 milestone!

October 2015

CUK founders Gerald & Susan Fitz-Gibbon at...Still plenty of time to register for the Milan...

September 2015

Well done to Aimee & Steve with another...What an amazing fund raising weekend it was...Guitars on The Beach - another huge success...

July 2015

Angela's travels with her tumour.....Sean runs the the 8.5 mile Sutton fun run and...Aimee and Steve run the "Nuts Challenge for...

April 2015

GlobeImmune Announces Opening of Randomized...

March 2015

Oliver and Kate run their first marathon for...Wow….. $1/2m raised so far!

January 2015

The simple math that explains why you may (or...A great start to 2015

December 2014

Sue Puddicombe does it again!With the state of cancer diagnosis a source of...John Baron MP, chairman of the All Party...John Baron MP hosts and addresses ‘Cancer52’...

November 2014

Updating James's Story........ Exceptional Wallace Collection fundraiser for...Chordoma UK receives a bequest of £10,000.00News from GlobeImmune Inc following their...

October 2014

Some facts, figures and a little trumpet...Hollywood here we come…..Lord Darzi formally unveils plans today to...Tim runs for Chordoma UK

September 2014

Central London Gallery Event...

August 2014

With a quite extraordinary result for...Sarah Holdsworth - runs like mad for Chordoma...

June 2014

Dinner Dance, Ferrari's Country Hotel,...Reception at St James's PalaceFunds are needed NOW to develop new therapies...Raising funds for research and awareness...

May 2014


April 2014

Getting close to £100k !

March 2014

RAT RACE DIRTY WEEKEND. Ginny Major goes for it!The LONDON MARATHON.. Freddie, Joanne and...HAPPY BIRTHDAY TO US, HAPPY BIRTHDAY TO US.....Plans now being made for the Great River Race...Lots happening this spring.....

September 2013

NEW CHORDOMA UK WRISTBANDS AVAILABLE.ChordomaUK participating in London's 21 mile...

August 2013

Blood transfusions during cancer treatment... ...Imatinib.. (Glivec in the UK) often talked...New Initiative Launches to Organize the UK...Welcome Lisa....

June 2013

Researchers at Oxford University Hospitals are...Identification of repurposed small molecule...National Cancer Institute Opens First...Chordoma UK now joined the Cancer52 Alliance...Walkers raise over £2,500.00 for Chordoma UK

April 2013

Mail on Sunday article raises awareness

February 2013

Chi-chi Nwanoku & friends Chamber Concert benefitResearch - what have we achieved so far
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Help us raise money to fund more research into Chordoma