Who we are

Lord Darzi holds the Paul Hamlyn Chair of Surgery at Imperial College and the Chair of Surgery at the Institute of Cancer Research. He is an Honorary Consultant Surgeon at the Imperial College Healthcare NHS Trust and the Royal Marsden NHS Trust Hospitals... Read More In October 2010 he was appointed as Director for the Institute of Global Health Innovation at Imperial College. In 2012 Lord Darzi took up the role of Chair, Imperial College Health Partners.

He was knighted for his services in medicine and surgery in 2002. Lord Darzi was introduced to the United Kingdom’s House of Lords in 2007 as Professor the Lord Darzi of Denham and appointed Parliamentary Under-Secretary of State at the Department of Health.  He relinquished this role in July 2009 when he was appointed the United Kingdom’s Global Ambassador for Health and Life Sciences, an appointment re-confirmed in 2010 by Prime Minister David Cameron. Lord Darzi was appointed as a member of Her Majesty’s Most Honourable Privy Council in June 2009.

Lord Darzi comments:

“Chordoma is a rare cancerous bone, one the majority of people will never in their lifetimes come across. For those who receive a diagnosis of chordoma, these statistics are relevant only because the rarity means there are more questions than answers. Research into understanding and treating this rare cancer is urgently required.

I have been inspired by the courage, hope, dedication and tenacity of chordoma patients and their families and friends in their search to find a cure. It is my great honour and privilege to join them as Patron of Chordoma UK.”
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Richard Sutton-Mattocks joins the Board of Chordoma UK having previously served over 7 years as Chairman of the UCL Cancer Institute Research Trust, supporting cancer research at the UCL Cancer Institute. In that role he assisted with the development of.. Read More Chordoma UK and witnessed at first hand the research of Professor Adrienne Flanagan into potential therapies with which to treat chordoma. Inspired by that research and by the energy and determination of Susan and Gerald to improve outcomes for chordoma sufferers worldwide, Richard was delighted to be invited to join the Board of Chordoma UK. A graduate of Oxford University and a former Partner of Clifford Chance LLP, Richard is also a member of the Advisory Board of the Debbie Fund, supporting research at the UCL Cancer Institute into therapies for cervical cancer. Read Less

Ed has built his professional career in the marketing world within professional services and technology companies. He has worked for large companies, including Gartner and Oracle, as well as start ups, such as Orca Social, that he also co-founded. He currently... Read More manages enterprise relationships at a technology company called Showpad. He gained his undergraduate degree in Business from the University of Liverpool. Ed and his family have been closely associated with Chordoma UK since his father was diagnosed with the disease in 2008. Read Less

William joined the board of Trustees in 2022 having supported and participated in fund raising initiatives for Chordoma UK for many years. William brings a youthful enthusiasm to the board and is widely experienced in his professional field of Partner Marketing ... Read More having studied International Management at the University of Manchester and Copenhagen Business School. William has worked for global automotive and beverage brands and today hold a marketing management position at What3Words. William’s connection with Chordoma is personal, his mother Susan having lived with chordoma for some 10 years.
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Inga is a surgical doctor undertaking her PhD at University College London. Her research focuses on the genomics of chordoma and understanding this alongside clinical data. She has helped to establish the UK National Chordoma Cohort – a NIHR portfolio... Read More study, led by Adrienne Flanagan and Professor David Choi, UCL and the National Hospital for Neurology and Neurosurgery, to which more than 85 patients have been recruited.
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