News and events

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11/04/20

"Meet the Experts" Evening at UCL Cancer Institute

On the 24th January 2020, patients with chordoma and a friend or family member attended a special "Meet the Experts" evening hosted ...

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02/02/20

National Chordoma Day: Walking Towards A Cure

For those of you who were not able to attend the event organised by Chordoma U.K. last week - I gave a presentation to discuss a pro...

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10/12/19

The 2020 Prudential Ride London-Surrey 100

Following on the heels of the Virgin London Marathon, we are thrilled to announce that Chordoma UK has secured a number of guarantee...

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10/12/19

The 2020 Virgin London Marathon

For several years Chordoma UK has been fortunate to secure guaranteed places for a bunch of runners in the iconic Virgin London Mara...

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16/08/19

Hellie's Story from December 2016

The following piece below comes from the blog of Hellie Meaney: https://protonbeamtherapyzurich.wordpress.com/about/Her reasons...

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06/08/19

New funding for research into Chordoma

Dr Inga Usher, funded by Chordoma UK, has won £10,000 from the Pathological Society of Great Britain and Ireland to carry out resear...

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28/04/19

My Day Out – Classic Car Outing 2019

My Day Out – Classic Car Outing 2019At the Chordoma UK Christmas Fair 2018 I spotted this outing in the ‘silent auction’ and put in ...

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31/03/19

Notochordal Cell Tumours Workshop

On Saturday 16th March 2019 we had the pleasure of meeting with people affected by Chordoma to design an information sheet abou...

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03/03/19

Chordoma research prize

Chordoma research undertaken at RNOH and UCL wins prize at the Pathological Society of Great Britain and Ireland Winter Meeting, 201...

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05/02/19

Understanding Chordoma: A National Cohort Study

Firstly, a special thank you is owed to the people who have contacted us since the last newsletter.  Please feel free to feed b...

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01/03/18

Understanding Chordoma: A National Cohort Study

2018 sees a new nationwide study Understanding Chordoma: A National Cohort Study opening at the Royal National Orthopaedic Hospital ...

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“Hoping to keep well and carry on with life as long as possible and enjoy the grandkids.”

Read Mrs S' story

“I feel like I'm learning to walk all over again...”

Read Mr P' story

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There is little funding available for research into this relentless bone cancer mainly because it is relatively rare, occurring in only 1 in 800,000 of the population. Without a focused approach to raising money for research into chordoma, little will change quickly.

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