News and events
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23/08/22
The Understanding Chordoma national cohort study
The Understanding Chordoma national cohort study has finished recruiting participants after four years. Participants will now be fol...
Read more23/08/21
Chordoma UK update
A success story for Chordoma research – Dr Inga - the co-ordinator of the Understanding Chordoma study receives FellowshipDr Inga Us...
Read more22/01/21
Benign Notochordal Cell Tumour (BNCT) Information Sheet
Benign Notochordal Cell Tumour (BNCT) Information SheetWhat is a Benign Notochordal Cell Tumour (BNCT)?A Benign Notochordal Cell Tum...
Read more11/04/20
"Meet the Experts" Evening at UCL Cancer Institute
“Meet the Experts” evening organised by Chordoma UK@ UCL Cancer Institute Meet the Experts on ChordomaOn the 24th January, Chordoma...
Read more02/02/20
National Chordoma Day: Walking Towards A Cure
For those of you who were not able to attend the event organised by Chordoma U.K. last week - I gave a presentation to discuss a pro...
Read more10/12/19
The 2020 Prudential Ride London-Surrey 100
Following on the heels of the Virgin London Marathon, we are thrilled to announce that Chordoma UK has secured a number of guarantee...
Read more10/12/19
The 2020 Virgin London Marathon
For several years Chordoma UK has been fortunate to secure guaranteed places for a bunch of runners in the iconic Virgin London Mara...
Read more16/08/19
Hellie's Story from December 2016
The following piece below comes from the blog of Hellie Meaney: https://protonbeamtherapyzurich.wordpress.com/about/Her reasons...
Read more06/08/19
New funding for research into Chordoma
Dr Inga Usher, funded by Chordoma UK, has won £10,000 from the Pathological Society of Great Britain and Ireland to carry out resear...
Read more28/04/19
My Day Out – Classic Car Outing 2019
My Day Out – Classic Car Outing 2019At the Chordoma UK Christmas Fair 2018 I spotted this outing in the ‘silent auction’ and put in ...
Read more31/03/19
Notochordal Cell Tumours Workshop
On Saturday 16th March 2019 we had the pleasure of meeting with people affected by Chordoma to design an information sheet abou...
Read more“Hoping to keep well and carry on with life as long as possible and enjoy the grandkids.”
Read Mrs S' story“I feel like I'm learning to walk all over again...”
Read Mr P' storyWant to make a donation?
You are the reason we can keep providing our vital supprt and funding. Individual donations and gifts may be made directly to Chordoma UK and enhanced through GIFT AID. Your fundraising can benefit from Chordoma UK`s charitable status enabling donations to be made through the Gift Aid scheme directly to the Chordoma UK bank account.
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There is little funding available for research into this relentless bone cancer mainly because it is relatively rare, occurring in only 1 in 800,000 of the population. Without a focused approach to raising money for research into chordoma, little will change quickly.
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