Fundraising and how to help

There are many ways you as an individual or group can support Chordoma UK and make a real difference to the lives of those affected by this relentless disease.

You, your friends and family may wish to take a pro-active position and start your own fundraising initiative for Chordoma UK. Run a marathon or organise a sponsored walk or swim, organise a cake sale, auction, car boot sale or perhaps a concert or ball. We can help by providing ideas, advice and practical assistance. Our fundraising aim is to have fundraising running events and initiatives across the country – together we can.

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News and events


Get Your Wristband On For Chordoma UK

Show your support and spread the word about Chordoma UK by rocking one of our green wristbands. Everyone's invited to join in!

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How your donation is spent

There is little funding available for research into this relentless bone cancer mainly because it is relatively rare, occurring in only 1 in 800,000 of the population. Without a focused approach to raising money for research into chordoma, little will change quickly.

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Watch our short film

Watch our short video about Chordoma UK and how we are raising awareness of chordoma within patient and clinician communities in order to ensure the future of high-impact research initiatives.

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Want to make a donation?

You are the reason we can keep providing our vital supprt and funding. Individual donations and gifts may be made directly to Chordoma UK and enhanced through GIFT AID. Your fundraising can benefit from Chordoma UK`s charitable status enabling donations to be made through the Gift Aid scheme directly to the Chordoma UK bank account.

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Who are we?

Meet our founder Susan Fitz-Gibbon and her incredible story, our patron the Rt Hon Professor the Lord Darzi of Denham KBE, and our experienced board of trustees dedicated to ensuring the highest levels of legal and financial support of Chordoma UK.

Find our how you can join our research programme. Your dontation really can make a difference.

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We all support each other

To share experiences, ask questions or vent your emotions and find others who understand.

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Get in touch

If you have any questions about Chordoma UK, or would like to talk to someone about cancer, send us an email and we'll get back to you as soon as we can.

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