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11/04/20

"Meet the Experts" Evening at UCL Cancer Institute

“Meet the Experts” evening organised by Chordoma UK@ UCL Cancer Institute  Meet the Experts on ChordomaOn the 24th January, Chordoma...

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02/02/20

National Chordoma Day: Walking Towards A Cure

For those of you who were not able to attend the event organised by Chordoma U.K. last week - I gave a presentation to discuss a pro...

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10/12/19

The 2020 Prudential Ride London-Surrey 100

Following on the heels of the Virgin London Marathon, we are thrilled to announce that Chordoma UK has secured a number of guarantee...

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10/12/19

The 2020 Virgin London Marathon

For several years Chordoma UK has been fortunate to secure guaranteed places for a bunch of runners in the iconic Virgin London Mara...

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16/08/19

Hellie's Story from December 2016

The following piece below comes from the blog of Hellie Meaney: https://protonbeamtherapyzurich.wordpress.com/about/Her reasons...

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06/08/19

New funding for research into Chordoma

Dr Inga Usher, funded by Chordoma UK, has won £10,000 from the Pathological Society of Great Britain and Ireland to carry out resear...

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28/04/19

My Day Out – Classic Car Outing 2019

My Day Out – Classic Car Outing 2019At the Chordoma UK Christmas Fair 2018 I spotted this outing in the ‘silent auction’ and put in ...

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31/03/19

Notochordal Cell Tumours Workshop

On Saturday 16th March 2019 we had the pleasure of meeting with people affected by Chordoma to design an information sheet abou...

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03/03/19

Chordoma research prize

Chordoma research undertaken at RNOH and UCL wins prize at the Pathological Society of Great Britain and Ireland Winter Meeting, 201...

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05/02/19

Understanding Chordoma: A National Cohort Study

Firstly, a special thank you is owed to the people who have contacted us since the last newsletter.  Please feel free to feed b...

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01/03/18

Understanding Chordoma: A National Cohort Study

2018 sees a new nationwide study Understanding Chordoma: A National Cohort Study opening at the Royal National Orthopaedic Hospital ...

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There is little funding available for research into this relentless bone cancer mainly because it is relatively rare, occurring in only 1 in 800,000 of the population. Without a focused approach to raising money for research into chordoma, little will change quickly.

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