News and events

05/03/26

Rare Cancers Bill Becomes Law

On 5 March 2026 the landmark Rare Cancers Bill officially became law as the Rare Cancers Act 2026. The Bill, led by Scott Arthur MP,...

03/03/26

Celebrating 5 Years of Chordoma Chat and Cheers

This year, we are proudly celebrating the 5th anniversary of Chordoma Chat & Cheers, our monthly virtual support group held on the l...

02/03/26

Autumn in New England

The International Chordoma Community Conference (ICCC), organised by the Chordoma Foundation, will return this year and take place i...

02/03/26

Living with a "New Normal" After a Chordoma Diagnosis

A chordoma diagnosis can change life overnight. Because it is so rare, many people first encounter the word at one of the most overw...

01/12/25

Holding on to Hope in the Face of Loss

As we prepare for the festive season, a time often associated with joy and togetherness, it is important for us to pause and acknowl...

21/11/25

Virtual Quiz-Mas is Back!

Get Ready for a Festive Brainteaser!The nights are drawing in, and the festive spirit is just around the corner! This year, we’re th...

21/11/25

A Heartfelt Thank You To Our Business Champions

We are continually humbled by the strength and resilience of our community. A huge part of that community extends beyond patients, f...

23/09/25

Rare, But Never Forgotten: Our Chordoma Community

Tuesday September 30th is Rare Cancer Day, a day dedicated to raising awareness for rare cancers. To have a chordoma diagnosis is to...

23/09/25

Run the 2026 London Marathon for Chordoma UK

The 2026 London Marathon on Sunday April 26th is more than just a race – it’s a chance to change lives. Chordoma UK is calling on al...

23/05/25

The Big Virtual Sun-Quiz

*UPDATE* A massive thank you to everyone who made our June Sun-Quiz an absolute blast. Your fantastic energy and competitive spirit ...

22/05/25

Chordoma UK-funded Research Sheds Light on the Origin of ...

We are thrilled that Dr Inga Usher, who was recently awarded her PhD, had her research published in the Journal of Pathology in May....