News and events

02/06/26

The 2026 Big Virtual Sun-Quiz

THE BIG VIRTUAL SUN-QUIZ 🌞Get Ready for The Big Virtual Sun-Quiz 2026!Sharpen your wits, gather your favourite teammates,and prepare...

02/06/26

The Fabric of Our Community: Sharing the Journey, Together

Living with or supporting someone with a specific, complex diagnosis like chordoma is a journey marked by things that only our commu...

05/03/26

Rare Cancers Bill Becomes Law

On 5 March 2026 the landmark Rare Cancers Bill officially became law as the Rare Cancers Act 2026. The Bill, led by Scott Arthur MP,...

03/03/26

Celebrating 5 Years of Chordoma Chat and Cheers

On Thursday 31st May 2026, Sylvie Leslie hosted the 5th anniversary meeting of Chat & Cheers, our online virtual support gathering. ...

02/03/26

Autumn in New England

The International Chordoma Community Conference (ICCC), organised by the Chordoma Foundation, will return this year and take place i...

02/03/26

Living with a "New Normal" After a Chordoma Diagnosis

A chordoma diagnosis can change life overnight. Because it is so rare, many people first encounter the word at one of the most overw...

01/12/25

Holding on to Hope in the Face of Loss

As we prepare for the festive season, a time often associated with joy and togetherness, it is important for us to pause and acknowl...

21/11/25

Virtual Quiz-Mas is Back!

Get Ready for a Festive Brainteaser!The nights are drawing in, and the festive spirit is just around the corner! This year, we’re th...

21/11/25

A Heartfelt Thank You To Our Business Champions

We are continually humbled by the strength and resilience of our community. A huge part of that community extends beyond patients, f...

23/09/25

Rare, But Never Forgotten: Our Chordoma Community

Tuesday September 30th is Rare Cancer Day, a day dedicated to raising awareness for rare cancers. To have a chordoma diagnosis is to...

23/09/25

Run the 2026 London Marathon for Chordoma UK

The 2026 London Marathon on Sunday April 26th is more than just a race – it’s a chance to change lives. Chordoma UK is calling on al...