News and events

19/08/16

Chordoma Biobank coordinator Clare Unwin settles in.....

As Chordoma Biobank Coordinator, Clare is now working to support the care and treatment of individuals with chordoma by promoting awareness amongst a network of health professionals in specialist Centers of Excellence across the UK where chordoma is treated. Clare is maintaining a patient database and sample biobank to assist current and future chordoma research and support in the coordination of chordoma treatment trials.

Clare says "I have been seeing on average 3 chordoma patients each week, seeking their consent to donate their tissue to research and taking serial blood samples at each of their visits to Stanmore or Bolsover Street. With few exceptions, all patients I have met with have been happy to donate and are interested in the research we are undertaking. When I meet patients for the first time I give them an overview of my role as Chordoma Coordinator - one even mentioned he had read about me on the website which I believe is positive and shows good traffic to the CUK site".

Internationally, Clare has just been in contact with an Israeli based chordoma patient from Tel Aviv and successfully had 8 vials of her frozen tissue delivered to RNOH to be used in research.

Clare holds a Bachelor of Applied Science from Deakin University in Melbourne, Australia and has a background working in private healthcare clinics in London and the wider UK. To contact Clare via e-mail -  info@chordoma-uk.org or c.unwin@ucl.ac.uk

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