News and events


Chordoma Biobank coordinator Clare Unwin settles in.....

As Chordoma Biobank Coordinator, Clare is now working to support the care and treatment of individuals with chordoma by promoting awareness amongst a network of health professionals in specialist Centers of Excellence across the UK where chordoma is treated. Clare is maintaining a patient database and sample biobank to assist current and future chordoma research and support in the coordination of chordoma treatment trials.

Clare says "I have been seeing on average 3 chordoma patients each week, seeking their consent to donate their tissue to research and taking serial blood samples at each of their visits to Stanmore or Bolsover Street. With few exceptions, all patients I have met with have been happy to donate and are interested in the research we are undertaking. When I meet patients for the first time I give them an overview of my role as Chordoma Coordinator - one even mentioned he had read about me on the website which I believe is positive and shows good traffic to the CUK site".

Internationally, Clare has just been in contact with an Israeli based chordoma patient from Tel Aviv and successfully had 8 vials of her frozen tissue delivered to RNOH to be used in research.

Clare holds a Bachelor of Applied Science from Deakin University in Melbourne, Australia and has a background working in private healthcare clinics in London and the wider UK. To contact Clare via e-mail - or


Want to make a donation?

You are the reason we can keep providing our vital supprt and funding. Individual donations and gifts may be made directly to Chordoma UK and enhanced through GIFT AID. Your fundraising can benefit from Chordoma UK`s charitable status enabling donations to be made through the Gift Aid scheme directly to the Chordoma UK bank account.

Donate now

Join our Mailing List

Please sign up to follow our ongoing story and events.


How your donation is spent

There is little funding available for research into this relentless bone cancer mainly because it is relatively rare, occurring in only 1 in 800,000 of the population. Without a focused approach to raising money for research into chordoma, little will change quickly.

Find out more

Get in touch

If you have any questions about Chordoma UK, or would like to talk to someone about cancer, send us an email and we'll get back to you as soon as we can.

Contact us


We all support each other

To share experiences, ask questions or vent your emotions and find others who understand.

Join us here