News and events

02/02/20

National Chordoma Day: Walking Towards A Cure

For those of you who were not able to attend the event organised by Chordoma U.K. last week - I gave a presentation to discuss a proposal that I had put forward, and was subsequently accepted by the Trustees of Chordoma U.K.

I am therefore very proud and honoured to present to you our first annual National Chordoma Day which will take place on Sunday 20th September 2020

The aim will be to spread awareness of Chordoma and also to raise much needed funds to help the research towards improved therapy and hopefully, in due course, a cure.

Our National day will take place under the banner « Walking Towards a Cure » and will involve Chordoma patients, together with friends and family.

The idea is that we will have team leaders all over the country, who I will coordinate and assist to organise a 5km local sponsored walk. (Participants can choose to walk or use a wheelchair if needed).

Every walk will get its own local media coverage and Chordoma U.K. will then spread the word to the National media as well.

I will be providing you all with more information as we go along but for now, in order to get started, I need to know who is on board so email me if you would like to take part or become a team leader for your area and let’s make our National Chordoma Day a fun day and one that will make a difference.

Thank you 💚

Sylvie

Email address: sylvievoicee@yahoo.com

Archive

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There is little funding available for research into this relentless bone cancer mainly because it is relatively rare, occurring in only 1 in 800,000 of the population. Without a focused approach to raising money for research into chordoma, little will change quickly.

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