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2016 London Marathon team runners - Ed and Laura

Ed Major and Laura Evans are running the 2016 Virgin Money London Marathon for a fund dedicated to research into a rare cancer, Chordoma.

Chordoma is a rare primary bone cancer (which starts in rather than spreads to bones). It can occur at the base of the skull, the spine or the sacrum and coccyx (base of spine). It is generally slow growing and frequently recurs after treatment.

For those diagnosed with chordoma treatment options are limited. Initial diagnosis is often difficult as its presenting symptoms can mimic more common musculoskeletal pain or other more common diseases.

Professor Flanagan at the UCL Cancer Institute has carried out research which led to a definitive marker for chordoma, but now further work is underway to use these findings to discover how best to treat patients.

All money raised by Ed and Laura will be going towards this research.

Ed said, "After losing my Father to Chordoma in 2015 I am running in his memory. Chordoma UK was closely in his heart as he had hands on experience with what the research could do for all rare cancer sufferers. I hope by running, I can raise the profile of the great work the team at Chordoma UK is doing"

To support their marathon please sponsor them


Want to make a donation?

You are the reason we can keep providing our vital supprt and funding. Individual donations and gifts may be made directly to Chordoma UK and enhanced through GIFT AID. Your fundraising can benefit from Chordoma UK`s charitable status enabling donations to be made through the Gift Aid scheme directly to the Chordoma UK bank account.

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How your donation is spent

There is little funding available for research into this relentless bone cancer mainly because it is relatively rare, occurring in only 1 in 800,000 of the population. Without a focused approach to raising money for research into chordoma, little will change quickly.

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If you have any questions about Chordoma UK, or would like to talk to someone about cancer, send us an email and we'll get back to you as soon as we can.

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