News and events

06/04/17

Paris marathon runner Alex raises almost £6,000 for CUK

Here is Alex's' story and  his motivation for running for CUK in memory of his dear friend Cedric In French and English. To support Alex follow this link..

https://chordomauk.everydayhero.com/uk/alexparismarathon

Hi everyone,

I'm running the Paris marathon on 9th April for a cause very close to me. A great friend of mine and to so many others, Cedric Berton, passed away in March 2015 after a long and courageous battle with a rare form of cancer known as Chordoma. Unfortunately work is ongoing to find an effective cure for Chordoma and I am raising money for the Chroma UK to help with their research.

Ceddy was original from Reims, about an hour from Paris. I have no doubt that Ceddy would tell me, with a smile, that a stumpy Irish man would be better off having a beer by the Seine than running around the Paris streets and I would be very grateful if you could help me raise as much money in his memory as I can.

More information on the Chroma UK can be found here (http://chordoma-uk.org).

Many thanks in advance for your support,

Alex


Bonjour à tous,
Je cours le marathon de Paris le 9 avril pour soutenir une cause qui m'est très proche. Mon grand ami Cedric Berton (et également l'ami de tant d'autres) est décédé en 2015 après une longue et courageuse bataille contre une forme rare de cancer appelée Chordoma. A ce jour, aucun remède efficace n'a été trouvée pour soigner Chordoma. C'est pourquoi je veux amasser des fonds pour la Fondation Chordoma Europe pour aider leurs recherches.

Ceddy était originaire de Reims, à environ une heure de Paris. Je vois deja d'ici Ceddy me disant en rigolant qu'un Irlandais serait mieux avec une bière a la main au bord de la Seine que courant dans les rues de Paris. Pour nous souvenir, j'espère pouvoir recueillir autant d'argent que je le peux.

Vous trouverez plus d'informations sur la Chordoma UK (http://chordoma-uk.org)

Merci beaucoup pour votre soutien,

Alex


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There is little funding available for research into this relentless bone cancer mainly because it is relatively rare, occurring in only 1 in 800,000 of the population. Without a focused approach to raising money for research into chordoma, little will change quickly.

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