News and events

04/04/17

Charlotte raises £900 for Chordoma UK...

This story dropped off our site so we're reloading it to say thanks again to Charlotte and her supporters who ran the Hampton Court 1/2 marathon for Chordoma UK back in February...  Here's Charlotte's just giving page with all the background to her wonderful fundraising effort - clearly in the past tense!

I am running for Emma who last year was diagnosed with a rare and often fatal form of cancer, Chordoma. Emma has 3 young children - the smallest was just 6 months old when she was diagnosed.

Following crucial surgery, Emma had most of the tumour removed but the tumour eroded a lot of her vertebra on one side of her neck so she now has metalwork , leading to very limited movement in the neck. Surgery didn't remove all of the tumour. It's a watch and wait game with regular MRI scans. Best case scenario is that the tumour can be controlled and managed and remains stable for some time. At some point in the future Emma will need further surgery and proton beam radiation therapy.

So, in the face of all this Emma decided to run a half marathon. Having not run before Emma is determined to run and raise funds for Chordoma UK. Vital research is needed to help tackle this - literally - 1 in a million form of cancer. If she can achieve one thing Emma would like to ensure that someone else being diagnosed as she was, can have access to more information about the disease and ultimately  - npot be told that it is incurable.

So - Emma got New Malden running. Inspired by her and wanting to support her the running group just keeps growing. Two to three times a week people meet and - well, just run. Some days there are two runners, some days there are ten. There has been torrential rain and there have been head torches. People turn up despite teething babies and tantrum prone toddlers up at 4 am (maybe because of the latter). Older children have been known to join in. By bringing these people together, friendships have formed, mental and physical health is improved and above all we are hoping to make a difference for anyone who finds themselves in the position Emma did last year.


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There is little funding available for research into this relentless bone cancer mainly because it is relatively rare, occurring in only 1 in 800,000 of the population. Without a focused approach to raising money for research into chordoma, little will change quickly.

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