News and events

27/06/13

Chordoma UK now joined the Cancer52 Alliance .... (52% of UK cancer deaths are from less common cancers)

Cancer52 has grown from an initial group brought together at the request of the National Cancer Director, Mike Richards to input into the Cancer Reform Strategy.

We are so named because 52% of cancer deaths in the UK are from the less common cancers (i.e. excluding the ‘big four’: bowel, breast, lung and prostate), although in 2010 this proportion increased to 53%.

Cancer52 is an alliance of more than 60 organisations working to address the inequalities that exist in policy, services and research into the less common cancers and to improve outcomes for patients with these highly challenging diseases. Most who work for the organisation give their time and resources on a voluntary basis.

Our members are all organisations concerned with the less common cancers. Many of our members are very small: over half have an annual income below £200,000; many exist on incomes of only hundreds of pounds a year.

Our aims are:
Listening. We listen to the authentic and direct voices of the less common cancers community (including patients and survivors, carers, families and other representatives).
Representing. We raise the profile of the less common cancers, giving member charities and those they represent a more powerful voice and the driving force of a larger group.
Sharing. We share information and experience, making each member organisation more effective in its work.


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There is little funding available for research into this relentless bone cancer mainly because it is relatively rare, occurring in only 1 in 800,000 of the population. Without a focused approach to raising money for research into chordoma, little will change quickly.

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